Senior Director, Patient Advocacy

Senior Director, Patient Advocacy

Location: Boston- On-site (Monday-Thursday) | Industry: Biotech / Pharma | Level: Senior Leadership

Are you a strategic leader with a passion for patient advocacy and rare diseases? This is a unique opportunity to shape global advocacy efforts and drive meaningful change for patients and their families. We're looking for a dynamic Senior Director of Global Patient Advocacy to lead initiatives that inform, empower, and activate patient communities across multiple therapeutic areas, including Niemann-Pick Type C (NPC), Urea Cycle Disorders (UCD), Sleep Disorders, and Vascular Ehlers-Danlos Syndrome (VEDS).

🔍 What You'll Do

• Define and execute global patient advocacy strategies in collaboration with cross-functional teams
• Build and maintain strong relationships with patient advocacy organizations worldwide
• Serve as the internal expert on patient needs and advocacy trends
• Develop and manage strategic and tactical advocacy plans, including budget oversight
• Represent the organization at key advocacy meetings and patient-focused events
• Collaborate with internal teams (medical affairs, regulatory, commercial, clinical development, and more) to integrate patient insights into company initiatives
• Lead sponsorship and grant request processes for advocacy partnerships
• Champion a culture of patient centricity across the organization

✅ What You Bring

• Bachelor's degree in biological sciences, business, marketing, or a related field
• 10+ years of experience in the pharmaceutical, biotech, or patient advocacy space
• Proven success in patient engagement, advocacy strategy, or organizational partnerships
• Strong communication, leadership, and relationship-building skills
• Experience developing educational resources and advocacy communications is a plus

This is more than a leadership role-it's a chance to be a voice for patients and a driver of change in the rare disease community. If you're ready to lead with purpose and passion, we'd love to hear from you.