Senior Director, Patient Advocacy
Senior Director, Patient Advocacy
Location: Boston- On-site (Monday-Thursday) | Industry: Biotech / Pharma | Level: Senior Leadership
Are you a strategic leader with a passion for patient advocacy and rare diseases? This is a unique opportunity to shape global advocacy efforts and drive meaningful change for patients and their families. We're looking for a dynamic Senior Director of Global Patient Advocacy to lead initiatives that inform, empower, and activate patient communities across multiple therapeutic areas, including Niemann-Pick Type C (NPC), Urea Cycle Disorders (UCD), Sleep Disorders, and Vascular Ehlers-Danlos Syndrome (VEDS).
🔍 What You'll Do
- Define and execute global patient advocacy strategies in collaboration with cross-functional teams
- Build and maintain strong relationships with patient advocacy organizations worldwide
- Serve as the internal expert on patient needs and advocacy trends
- Develop and manage strategic and tactical advocacy plans, including budget oversight
- Represent the organization at key advocacy meetings and patient-focused events
- Collaborate with internal teams (medical affairs, regulatory, commercial, clinical development, and more) to integrate patient insights into company initiatives
- Lead sponsorship and grant request processes for advocacy partnerships
- Champion a culture of patient centricity across the organization
✅ What You Bring
- Bachelor's degree in biological sciences, business, marketing, or a related field
- 10+ years of experience in the pharmaceutical, biotech, or patient advocacy space
- Proven success in patient engagement, advocacy strategy, or organizational partnerships
- Strong communication, leadership, and relationship-building skills
- Experience developing educational resources and advocacy communications is a plus
This is more than a leadership role-it's a chance to be a voice for patients and a driver of change in the rare disease community. If you're ready to lead with purpose and passion, we'd love to hear from you.
FAQs
Congratulations, we understand that taking the time to apply is a big step. When you apply, your details go directly to the consultant who is sourcing talent. Due to demand, we may not get back to all applicants that have applied. However, we always keep your CV and details on file so when we see similar roles or see skillsets that drive growth in organisations, we will always reach out to discuss opportunities.
Yes. Even if this role isn’t a perfect match, applying allows us to understand your expertise and ambitions, ensuring you're on our radar for the right opportunity when it arises.
We also work in several ways, firstly we advertise our roles available on our site, however, often due to confidentiality we may not post all. We also work with clients who are more focused on skills and understanding what is required to future-proof their business.
That's why we recommend registering your CV so you can be considered for roles that have yet to be created.
Yes, we help with CV and interview preparation. From customised support on how to optimise your CV to interview preparation and compensation negotiations, we advocate for you throughout your next career move.